A Special Meeting

Hello readers,

I went to Papworth Hospital, with Terry and visited Stacie Pridden! Stacie is a very courageous and strong young lady who I met 3 years ago through the Pulmonary Hypertension Facebook group. Many people, like myself, have been following her blog in her wait to getting a double lung and heart transplant. 3 years on and after 3 false alarms, Stacie finally got the call for her transplant and I knew from that moment, when visitors were allowed, I was going to go and meet her!

Me and Stacie

I had a super time talking to Stacie in person for the first time and she is an inspirational young lady! We chatted for a while and it was good to get to know her and I am pleased to see how well she was doing. I can't wait to see her again soon and I will keep on wishing her a speedy recovery, to get stronger and stronger.

Selfie Time

As you can tell it was a delight to see Stacie, and I am so glad to see her going from strength to strength after a transplant. I, too, may one day need a double transplant as for now it is my only cure for Pulmonary Hypertension, but seeing Stacie has been very positive for me and for what is yet to come. Until then, as always I will go by my motto of 'living life to the full!'

As you can see organ donation is vital for many of those on the transplant list. It not only gives hope to those who are waiting, but gives a new lease of life to the person as well. If you are not on the organ donation register, but would like to be an organ donor, then please register here!


Become an Organ Donor Today!

7 Years PH Anniversary

Hello readers,

It’s been a very successful and busy weekend! Luckily after my stint in hospital and getting topped up with oxygen, it’s really helped to get me through the weekend… and hopefully longer! However I did chill out on the run up to the shows, so that must have helped too!


If you have read the “About Me” you will know it’s been 7 years since my diagnosis of Pulmonary Hypertension!!! I can’t quite believe that I’m doing the things in life that I’m doing right now and I’m in a happy place! Yes it’s been a rollercoaster of a ride since ‘that’ day, but wow have I stunned my doctors in how far I have come since then. It’s funny how the focus and attitude towards life can change after being told I may not live until 18 years old, but thanks to that, my strength and determination has got me to where I am today and I wouldn’t change it for the world! The love and support from those close to me is incredible as always and they have seen me through the real tough, and happy times of the past 7 years. A special mention to my little loyal 4-legged companion, Paddy, who has been there for me for the past 5 years of this.. I swear he knows everything about me, haha! Anyway, doctors are still happy with me and it’s good to know that I am stable and can do the things I want to do in my life. Right now, it’s finishing my MA degree in Music Therapy, whilst enjoying everything else I love in-between!! Living life to the full!

7 Years PH Anniversary



My little loyal 4-legged companion, Paddy


So back to the weekend.. I’ve been Music Directing the show Dracula Spectacula with KYDS and it’s been so much fun! The three shows were such a success and the children performed brilliantly. Very proud of them all! I will definitely miss working with them, and I can’t wait to be involved in the next show!

One Proud MD


Anyway to end on, I’ve got an enjoyable rest of the month ahead, starting with watching the Little Shop of Horrors at the Mercury Theatre, seeing Terry and then my brother's special day... he's getting married! Wonderful! <3


MA Year 1 - I've passed!!

Hello readers,

Unfortunately I wasn't able to get over my tiredness from Uni and I was in A&E on Monday due to severe chest pains, after climbing 2 flights of stairs. I went straight on to Oxygen and my sats started to increase. I had the usual x-rays and ECG, both came back 'normal' for me.. so nothing serious! I was let out in time for my final day at Uni! To be honest, I think I've done my usual and over done it lately, what with stress of exams, and lots of musical activities happening at the same time, but I love what I do, and I'm still determined that PH isn't going to hold me back!!!


Got to love Oxygen!!!



On a good note though... Today is all about celebrations! 

I have passed the first year of my Masters Degree in Music Therapy. It's been a very difficult year as my health hasn't been that great this year and I've also being coping with grievance as my father sadly passed away at the beginning of the year. The support I have received throughout the months from close friends, my mum, my boyfriend, course mates and lecturers has been outstanding. I definitely wouldn't be celebrating my great results now without these people in my life.




Music Therapy Course Friends

However, I have made it, and I am looking forward to a holiday-filled summer!!


Dracula Spectacula

Hello readers,

As you have probably have seen by now I live for my music!

I am currently the Musical Director for the dramatic society, KYDS, and I am absolutely loving it. Yes it's tiring, but I love working with this group and the performance standard of the children in the show is outstanding!!

We've been rehearsing for the past few months and have got the show coming up on Friday and Saturday! I can't wait!!

Final rehearsal is tomorrow and all is looking great for the show!!

I just have to pace myself until those 2 days!!!