Newspaper Article

Dear Readers,
Yesterday Terry and I featured in the Daily Express paper. 


I first featured in the papers back in 2014 to raise awareness for PH. At the time I had just met Terry and I was about to start my Masters Degree in Music Therapy. 
I got a phone call last week from the BHF asking if I would talk to reporters for a follow up story on how I was getting on with my life nearly 4 years on.

This is a great article and shows how difficult life has been and can be but also how positive I can also be whilst living with PH. I hope you enjoy the read.

"She adds: “My hopes for the future are that I will remain stable enough to live a long and happy life.
“There are many medications for me to try before I need a transplant but until that time, with the support of my friends and family- especially my mum and Terry - I’m going to enjoy making the most of every day living with my husband and our dog Izzy. There’s no cure but there’s always hope."

Click here to read the full story.

Thanks for reading!

Speaking about PH

Dear Readers,

This screenshot says it all...


It is hard to open up about your feelings when you get diagnosed with an incurable condition. Your mind is all over the place and you just don’t know what to do. I have been there, I have hit rock bottom, it is very difficult! I had no one to turn to that had PH, at the time I was diagnosed and it can be a very lonely time. Thank goodness for the PHA UK, who put me in touch with other PH’ers and made me realise I wasn’t alone!

I now speak out everyday on Facebook, Twitter or Instagram about PH and I love raising awareness! We are rare, we are serious and I want people to try and understand what us PH’ers go through!

If it’s only a few that engage then great, but I am most proud that people are coming forward to speak to me personally and allowing themselves to open up about this cruel condition and know that I am there to chat for whenever they need someone to turn to who has experienced or experiencing their PH journey. Also being a trained Therapist I feel I can support them better too! I am not trying to be a counsellor or replace them or get paid for this, I am just another person that is there for them if they want someone to chat to.

I enjoy people sharing their PH stories with me and then sharing mine, as we are all going through the same thing and it isn't easy. For some of us it is an invisible illness and it is hard to cope with. People tell their friends, as much as some do try to understand and support you, it's sometimes easier to speak to someone who does know what you are feeling and going through.

So thank you for having the confidence of chatting to me and please anyone who needs someone to talk to about their PH, then I'm another person that will smile and say hello. You can contact me through Twitter DM or Facebook Messenger.


Thanks for reading!

Iron Infusion


Dear Readers,

Firstly, I've updated my blog! You can now follow me on Twitter and on my Facebook page without going elsewhere!! It took me a while to learn how to place these plugins into my blog, but I finally got there!! 😁

Today I've finally had my iron infusion! I was literally limping along until today arrived! I was so low on iron, every bone in my body ached, I was in severe pain not being able to walk and my breathing well, it was ridiculous.


Despite being on the Macitentan again, the low iron wasn't helping me at all. PH'ers tend to get a low iron count and have to get infusions regularly to keep it from falling dramatically. I am lucky to get my infusions done at my local hospital now, instead of trekking all the way to the Brompton and it makes the experience much better for me.



So far, so good with the Macitentan still and fortunately the side effects are minimal this time. Time will tell once the iron kicks in along with the Macitentan, but hopefully I'm fighting fit again and starting to feel good within and about myself!


I will keep you updated!!


Thanks for reading!


What is Eisenmenger Syndrome

Dear Readers,

As you know I have Pulmonary Hypertension, but I also have it with Eisenmenger Syndrome. This is due to my PDA (hole in the heart).

I have found an amazing video which describes what Eisenmengers Syndrome is. This is a 20 minute long video, but it explains the condition and it is explained very well. Eisenmenger Syndrome is a very complicated condition, but I am still determined to live and long and happy life despite it!

Click here for text explanation.

Enjoy the video!




Eisenmenger (I-sun-meng-uhr) syndrome is a complication of a heart defect that you're born with (congenital).

A heart defect that causes a hole (shunt) to develop between two chambers of your heart is the most common cause of Eisenmenger syndrome. This hole causes blood to circulate abnormally in your heart and lungs. Increased blood flow returns to your lungs instead of going to the rest of your body. The blood vessels in your lung arteries become stiff and narrow, increasing the pressure in your lungs' arteries. This permanently damages the blood vessels in your lungs.

Eisenmenger syndrome occurs when the increased pressure of the blood flow in the lung becomes so great that the direction of blood flow through the shunt reverses. Oxygen-poor (blue) blood from the right side of the heart flows into the left ventricle and is pumped to your body so you don't receive enough oxygen to all your organs and tissues.

Eisenmenger syndrome is a life-threatening condition requiring careful medical monitoring. Medications can improve symptoms and prognosis.