As you all know I was admitted to hospital last week due to decline of my PH. I'm doing ok and now I'm resting at home. I can not fault the Royal Brompton & Harefield Hospitals Specialist Care - the PH team there have been amazing with me and their help and swift actions are helping me through this tough time.
If I'm doing ok, I go to clinic every 3 months. When I go to hospital just for the day for clinic, people don't understand the journey, tests and clinic that I go through every time. It requires a lot of advanced transport planning due to difficulty of walking, breathlessness and chronic pain! Terry and I decided to put a video together to give people an insight of it all. Hope it gives you an understanding of clinic life for a PH'er!
Please share to continue to raise awareness. Thank you for your continuous support!
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