Chronic Illness and Income

Dear Readers,

When you've got a chronic illness and you're still at working age, some people find that if they are able to do some work, they do really try to make ends meet. Unfortunately illness can be very severe and not everyone can work. This means having little income can be very stressful!!! 

What can you do? Who can you turn to? 

There are a few options out there for people: 
Turn2Us
Money Advice Service
EntitledTo
Government

If you have Pulmonary Hypertension and need help with any benefits or financial support then please visit the PHA UK website. The PHA UK are in partnership with Turn2Us, so please get the financial support you need and deserve!



PHA UK website quotes - "Help is also available from the PHA UK team. Our special publication, ‘Financial support: What could my family and I be entitled to?’ was put together to help you negotiate the minefield of benefit entitlement and get what you deserve. Contact office@phauk.org.uk for your copy."

I am very lucky to have my musical skills and University education. Though my working hours are very reduced, I am able to work a little bit to support my husband by teaching from home. Check out my teaching profile here - 50% off first lesson!!

Thanks for reading!



Blue Badge Discrimination

Dear Readers,

This week I’ve done a new video on Blue Badge Discrimination! 


Being a sufferer of PH is difficult every day. Not just because I have cope with my symptoms of chronic pain and fatigue and breathlessness, but because of looking well on the outside. 

I have a blue badge due to this as I cannot walk very far, but I get discriminated a lot for using it! I am young, I drive a Mini, but because of this I get loads of insults! Why should it matter what car I drive?! Are “disabled people” not allowed nice cars?!

Please watch this video and try to understand how all these insults hurt us. Stories of other PH’ers will show up, please pause and read them. Also, you will see the results to a poll of which I did before filming this video... the results are shocking, but it sadly doesn’t surprise me!!! 

You will realise this is a daily problem for all those out there with an invisible illness! 

Once you have watched the video, please share it and help me to stamp down on Blue Badge Discrimination!!

Thank you for reading!




COPD Conference

Dear Readers,

Today I made an announcement via a video on my Youtube channel. 

I announced that I have been invited to talk at the COPD Conference in Rome!! I am so excited and honoured to be given this opportunity and I will be representing the PHA UK as their official ambassador.

I will be talking about how I live with Pulmonary Hypertension, how others live with PH in the UK and facts and statistics for those with PH in the UK. I will be working closely with the PHA UK to create a presentation for my talk at the conference. I can't wait to spread even more awareness and speak in front of around 180 heart and lung specialists from around the world!

Take a look at my video here.

Thanks for reading.


Special Announcement